A Preemie Love Story

In support of bloggers uniting to Fight for Preemies, I’d like to introduce the one preemie who has stolen my heart:
Fifty years ago, an impatient baby boy entered the world seven weeks early. Much to everyone’s surprised, a second baby boy also joined the party. Sadly, one twin brother lived only a few short days before being called home.
The remaining twin, weighing 3lbs 3oz at birth, struggled to survive. He was a sick little boy, prone to catching every bug that crossed his path. His development was delayed and he was diagnosis with cerebral palsy some time prior to his second birthday.
Because of his frequent and lengthy illnesses, he missed much of Grade 1, forcing him to repeat the grade. The same fate occurred in Grade 2, further dashing his self-esteem and his love for school. He went through the motions of doing his school work, without being fully engaged by his teachers or fully accepted by his fellow classmates.
That was until Grade 11 when he discovered computers that changed the trajectory of his life. He discovered a world that he understood, that he could control and manipulate as he liked; a world where he belonged and could immerse himself for hours and days at a time, a world where only his geeky friends could follow him.
Computers became a part of him, literally; he lives and breathes computers. Computers and what he can make them do are his passion. The guy with no spatial ability is able to see any computer screen in his mind’s eyes. Watching him solve a friend’s or client’s technical issue is amazing – and inspiring!
Initially, this guy may seem slow in thought. But, if people are patient and allow him to talk at his own pace, they realize he is wise beyond his years. Once his words and thoughts start flowing, his ideas, insights and dreams come shining through. He says the sweetest thing with such sincerity that he melts your heart and bring a tear to your eyes – or, at least, that is what he does to mine.
Who is the preemie who has captured my heart? The man I am proud to call my husband Darrell Hyatt.
Borrowing the thought-provoking question from my friend Liz, I asked Darrell, “If you could tell the whole world something once, have them believe you and understand, what would you tell them?â€
Darrell responded with:
When asked to answer this question, what came to mind was "believe in yourself". I know that is not necessarily an easy thing to do when others around you don’t believe you or say things which make you doubt yourself. You are the best judge of what you are capable of and can do.
When you are faced with the challenge look inside yourself and find that inner strength and belief in yourself; it will guide you to the solution. You may not have all the answers along the way but the answers will be there at the correct time. The more you believe in yourself, the stronger that belief will become and will carry you to greater heights.
With such insight, such wisdom, can you understand why this guy, who began life so small, has captured my heart?
Darrell, I love you.

Perhaps I was “abusing the systemâ€, given I wasn’t feeling too sick, yet, but I wasn’t taking any chances. I appreciate that doctors didn’t expect me to make it through my first night here on earth and that the last 43 years (next Wednesday!), I’m not ready to call it “quits†quite yet! I wanted to nip this bug early before my symptoms worsened. I’m now on a five-day treatment of Tamiflu from the British Columbia Pandemic Supply.
Thanksgiving Day, Darrell and I made our third pilgrimage to Las Vegas for the
This year we decided to stay at the
We were looking forward to experiencing the poshness of the Hilton. We had visited the Hilton in previous years and were impressed by its overall accessibility. However, we were immediately disappointed by our accessible room. Two double beds, an oversized chair and ottoman, plus our two wheelchairs made for a rather cramped room.
The bathroom was more spacious, with plenty of room to maneuver our wheelchairs. Curiously, the grab bars were used as towels racks. Even though a bath bench was provided, the legs were not adjustable, making it impossible to place over the side of the tub and, hence, rendering it useless for bathing. When asking at the front desk, housekeeping did not have any other benches with adjustable legs.
The worst annoyance was the bed’s height. The bed was higher than Darrell’s wheelchair wheelchair arm. How many accessible beds are that friggin’ high? Darrell had to transfer up to bed, on a rather soft mattress. As for me at only 5â€3’, climbing into bed took on a whole new meaning! According to the front desk, all of the beds are this height.
But, having said all of that, this was the first hotel room Darrell and I have experienced with an automatic door opener!
Integration, inclusion, mainstreaming – or whatever the current buzzword is – tends to focus on the individual with the disability. But, what about those in the class, group or workplace into which the individual is being integrated, included or mainstreamed? How does this process affect them?
Earlier this year, I had the
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